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The results of our online survey of AKU patients confirm the system is broken
We recently carried out an online survey of our AKU patients in England. You can read the results here: AKU patients survey results. As you’ll see, it shows that the current system of treating patients is far from perfect, with significant problems of misdiagnosis and failures in treatment.
Categories: AKU, Liverpool AKU Centre
AKU patient research
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This is me
There are 7,000 rare diseases. AKU is just one of them, although it has a place in the history books for being the first metabolic disease ever identified, in 1901. This blog provides advice, tips and suggestions for the wider rare disease movement based on our experience on AKU. Please read on and don't hesitate to comment.
