Contact
Interested in knowing more?
Do get in touch if you’d like to find out more about rare disease patient groups, are seeking advice, or want to know more about AKU.
My email is nick@akusociety.org.
This is me
There are 7,000 rare diseases. AKU is just one of them, although it has a place in the history books for being the first metabolic disease ever identified, in 1901. This blog provides advice, tips and suggestions for the wider rare disease movement based on our experience on AKU. Please read on and don't hesitate to comment.
Bonjour Nick
Je me suis inscrite
a tres bientot
amicalement
Micheline de la Réunion
Dear Nick,
Congratulations for your incredible work.
All the best,
Míriam
(Miquel Valls Foundation-Barcelona)