Archive
The Progeria Research Foundation
Just picked this up from the Faster Cures TRAIN Central Station, which features an interview with Audrey Gordon, president and executive director of the Progeria Research Foundation.
It’s definitely worth reading because she shares insights on the impetus for creating the foundation, its research progress to date and how findings in progeria have significant implications for the broader population. TRAIN Central Station is the first-of-its-kind online platform for venture philanthropy in medical research. Read more at TRAIN Central Station.
This is me
There are 7,000 rare diseases. AKU is just one of them, although it has a place in the history books for being the first metabolic disease ever identified, in 1901. This blog provides advice, tips and suggestions for the wider rare disease movement based on our experience on AKU. Please read on and don't hesitate to comment.
